america is so fucking based man

in any proper country that company at least gets forced to pay by the government then ordered to shut down forever due to wanton cruelty. all the employees get generous severance except whoever made that call. depending upon your view of carceral punishment there are a few ways to go with that guy.

  • john89@lemmy.ca
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    6 months ago

    Why is the drug so expensive? Does it have to do with patent laws, or is the actual manufacturing process ridiculously expensive?

    Does it require rare materials?

    • Corkyskog@sh.itjust.works
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      6 months ago

      I am fairly confident it must be made from unicorn blood and the glandular excretions from the lochness monster.

      • Aux@lemmy.world
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        6 months ago

        Growing specific viruses which predictably change human DNA and don’t turn you into a zombie or something, that’s far more complicated than unicorn blood.

  • invertedspear@lemm.ee
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    6 months ago

    Important facts for people that didn’t bother to read the article: it’s $2.1m each, so total is $4.2m. The coverage of the drug was cut on a schedule that was determined in January. The diagnosis of the disease was 5 days after the cut.

    The cost isn’t an issue in my mind, but I think good to know how much the parents are in for. Insurance companies exist because of these costs, they should have to cover any treatment that has significantly higher success rates, especially when the lack of coverage will result in death, or other life-long consequences.

    The timing and schedule are important as the headline makes it appear this decision was in response to these kids being born with the condition, when in fact, there was no diagnosis at the time of the cut and these kids were still months away from being born when the decision was made.

    Final bit, though this wasn’t in the article, the drug is being covered for these kids. It took pressure from the state government apparently, or maybe just all the bad press. Shouldn’t change anyone’s opinion on POS insurers, but it’s at least good news that these kids aren’t condemned to a death sentence.

    • Sam_Bass@lemmy.world
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      6 months ago

      What legitimate reason would there be to price drug like that? Is that what the r&d cost to create it? Greed. Thats where 99.9% of cost issues end up for

      • Aux@lemmy.world
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        6 months ago

        Modern medical research targeting worldwide drug distribution is ridiculously expensive due to legislation in different countries. Gone are the days when a pharmacist could give random shit to the unsuspecting clients to see if they would survive their walk home. And I don’t think you’d want these days to come back.

  • OhStopYellingAtMe@lemmy.world
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    6 months ago

    What’s most pathetic is the scale. $2.1 million may seem like a lot for a single use drug, but that $2.1 mil loss dissipated out to shareholders probably isn’t so much. I don’t have the exact numbers but I’ll bet the loss of revenue isn’t even a blip to the average shareholder income.

    They’re killing newborns based for what amounts to nothing to them. It’s sick.

        • Aux@lemmy.world
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          6 months ago

          No, I don’t know what you mean. Because you’re clearly confusing what insurers do and what pharmas do.

          • OhStopYellingAtMe@lemmy.world
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            6 months ago

            Wait, so Insurance companies aren’t publicly traded companies with stockholders? Dropping a covered drug so they wouldn’t have to pay out isn’t protecting their stock price? Maybe I am confused.

  • _number8_@lemmy.worldOP
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    6 months ago

    In a statement, Chief Executive Officer Mike Poore told KCTV5:

    “Global pharmaceutical companies are putting profitability over affordability, making it impossible for employers like our hospital system to bear the financial burden of these exorbitant drug prices.

    In January 2024, Mosaic’s Health Care Trustees made the gut-wrenching decision not to cover expensive gene therapy used to treat ultra-rare diseases. Covering these treatments could cripple the financial viability of our health system, directly impacting our more than 4,000 employees and the approximately 270,000 people who rely on the health care we provide in small communities across four states.

    We are working hard to help find alternative solutions and financial resources to help in this case. Bottom line: Families should not have to focus on the astronomical costs imposed by drug companies, but instead should be able to focus on the care of their children in a medical crisis.”

    wow it’s almost like it’s a shitty fucking system and you’re very much a part of it.

    from his linkedin:

    “Mike is one of the finest men with whom I have ever worked. He relates well to and inspires his employees. He demands high quality while keeping his eye firmly on the bottom line. I would follow him anywhere!”